About

The Registry

The Registry is an initiative of the McPeak-Sirois Group for Clinical Research in Breast Cancer, a non-profit organization that brings together hospitals in the health network that treat breast cancer and work in clinical research.

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The purpose of the Registry

The Registry is a database that collects information on cases of metastatic breast cancer in Quebec from information contained in the local databases of each of the participating hospitals.

The Registry contains non-identifying (coded) clinical and demographic data of consenting individuals and is intended to support future research projects in this population. It also aims to identify the current treatments of these patients, their evolution in terms of response to treatments, as well as their survival, as to ultimately optimizing clinical practice by improving the care provided.

Participants are recruited at the member hospitals of the Group that take part in the Registry project. Participants have a metastatic disease, are over 18 years old at the time of diagnosis and are capable to give their consent (within the meaning of the law).

The team

Our team consists of experienced professionals who are committed to ensuring the smooth running of the Registry for the benefit of patients and the scientific community.

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Nathalie Bolduc

Project Manager Operations

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Claude Nadon

Project Manager Information Technologies

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Steering Committee

-Responsibilities-

Defining the scope of the Registry, operating and data usage policies, the management of costs and timelines, and ensure its sustainability.

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Scientific Committee

-Responsibilities-

Reviewing and evaluating all requests for analysis according to the parameters defined in the data usage policy.

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Operations Committee

-Responsibilities-

Overseeing the planning and implementation of the operational platform and also the working instructions of the Registry.