Patients

Information for individuals diagnosed with breast cancer

If you have been diagnosed with metastatic breast cancer and wish to take part in the Registry, please first check the list of participating centres.

We invite you to visit this page again;
Join the Les COPINES Facebook Group, the Group’s Patient Partner Committee;
Send us an email (info@breastcancerregistry.org ) with your first name, last name and the name of the hospital where you are being treated.

The McPeak-Sirois Group supports the promotion in Quebec of a pan-Canadian registry from our partner Breast Cancer Canada.

In short:

PROgress Tracker is a pan-Canadian breast cancer registry that collects patient-reported outcomes (PRO) data.
The project is governed by a research ethics committee;
Data collection is carried out using questionnaires covering various experiences of participants with breast cancer over time, from diagnosis to treatment and monitoring;
Anonymized data is collected in a database to allow researchers and clinicians to analyze responses from a large population to assess quality of care, identify gaps and disparities and thus inform breast cancer policies and clinical care standards from coast to coast.